Thank You Janice!

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First, I want to say a ‘very sorry’ to my sister Janice. She has been the one to take me to Emory Clinic every time and wheel me around the facility. Her unselfishness and her time is endless. I’m sorry for my words yesterday. I’ve been under enormous stress right now. I think everything is happening at once.

I also want to thank my sister Susan for her researching LEMS disease and finding a clinical study in the United States. It is one of few I’ve seen for primarily those diagnosed with LEMS disease. I’m waiting to hear back from the program director on options. With a lot of prayer, blood, sweat and tears, I feel it is of God, and I feel He will turn things around if only to improve quality of life.

On a more business note, I hired a new publicist this morning to advertise and market all my books online. That includes the newest one, Saga of the Ages, coming out in June. We shall see what becomes of it.

 

LEMS Study

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I’m excited to announce that after six years, with my sister’s help, I have found a study primarily for those diagnosed with LEMS (Lambert Eaton Mysathenic Syndrome). The study takes place in either Miami or LA. The program manager contacted me today. He was not surprised I developed this disease from cancer. He seemed quite knowledgeable about the disease. He is trying to contact my neurologist at Emory.

There is one other option in August, GA. My sister Susan and her husband could drive me there. Also, I did find a friend in Miami who will drive with me from Ft. Lauderdale to Miami. My niece said she would drive me to the Atlanta airport. My sister Janice said she would also. Of course, a lot of prayers will be needed. It also depends if my doctor determines I am a candidate for the study.

I knew there was something out there that might help improve my quality of life or help others with this debilitating disease. I only wish it hadn’t have taken six years to find it. It is a new drug introduced that the FDA is trying to approve in the United States. It has already been approved in the European market.

I will see what develops in the next few days. Not sure at this stage when the study will begin, but I feel it will be soon. The program manager advised I will need to be placed on the drug first before the Miami study. Please keep your fingers crossed and prayers for a positive outcome. I pray this is the answer I’ve been looking for. Hopefully, it can replace my infusions one day.

No offenses were intended for friends or family members. I’m sorry if anyone was insulted with previous comments. This is an exciting moment, yet scary and emotional at the same time. Praise God for His goodness. If it is His will, the doors will open.

Sometimes I Wish I Was a Rock

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I do feel it is better to be an inanimate object sometimes. There seems to be no feelings, no pain, no disease and no worries. Of course there is no existence outside the physical range of things. There is no warmth or love of family and friends, no connections to reality and no thriving of life.

Yesterday, I saw another specialist at Emory in Atlanta. Apparently, my neuro-muscular disorder (LEMS) has worsened this year. My autoimmune issues are severe to very severe now. Surgery is out as the doctor said any surgery attempt would fail. My general mobility has weakened. I’m looking for a light wheelchair I can take easily in the car. The doctor was concerned about my driving. I will be driving a lot less now due to weakness in ankles. Maybe only very locally in emergency situations.

I don’t want any sympathy. I simply ask for prayer to make the right decisions. I feel it is important to spend the rest of my life enjoying time with family and friends while staying positive. I’ve always been a positive and upbeat person, but sometimes life can bring you down. Much thanks to my sister Janice who carries me to Atlanta and wheels me around Emory each time. She is a God-sent.

I don’t accept this disease and will continue on fighting it. I am a breast cancer survivor several years ago and I have lived six years since diagnosed with this disease. It is as if God is saying to me, “This too shall pass and you are okay.” I get tired of seeing doctors and specialists that don’t have the answers. I simply have come to the realization to let it be and be comforted in the fact that I have family surrounding me. Medical science can not change this condition nor cure it, but I still feel inside I can find a way to reverse it somehow and someway. I feel I will get better with time. Is that merely hopeful thinking?

I’ve finished writing my latest book, Saga of the Ages, but will not write another book until I get better control of my health issues. All I have to do now is make revisions/corrections/reviewing to the manuscript before submitting to the publisher. I ask for prayer in that direction too, in book sales and gaining notoriety as an author and writer.

New Shipment of Books

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This is to inform you that a new shipment will arrive here late tomorrow evening. If you haven’t requested a book of Lingering Shadows yet, you can do it now. I will give this first shipment at a 40% discount. That is $11.60 off Softcover and $17.20 off Hardcover. If you order two or more books, I will give an extra 10% off per book. That is half price. But please hurry as new books are limited.

New Book in the Making

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Saga of the ARaou, Beth and charles - Finished Sketchges is in the making. It’s halfway written now. Different from any other historical novel, it is created with mystery and suspense. You as the reader will be led down a path of multiple murders, espionage and romance. The setting is in colonial times, during the American Revolutionary War Era. Some of the date and facts are true; the characters are fictitious. Artist – Dannie Michelle WrightLisa Marie - Finished PaintingRaoul - Finished Sketch

PayPal Account Established

I have a new shipment of books arriving for my newest publication,  Lingering Shadows. Softcover will be $17.99 + $6.95 shipping, a total of $24.94. Hardcover will be $26.99 + $7.95 shipping, a total of $34.94. The book is 406 pages and weighs 1.5 lbs. Please email me at annepm@comcast.net for pricing of all other books; prices and shipping charges will vary.

For those that love to pay by check or cash, I have set up a new PayPal account. Please go to my link at https://www.paypal.me/AnneRMurray for payment information. Please note that it will take up to 7-10 business days for checks to clear the bank. I recommend paying by credit card for faster receipt of the book. In addition, I will need your full shipping address via email to send the books(s).

I have a limited amount of books coming. Please order today as books will not last. You can go to my author website at http://www.elizabethaphilips.com (pen name) to see a description of all books.

Update on New Book – Lingering Shadows (Correction)

I just talked to AuthorHouse Publishers. Softcover (paperback) is $17.99 with a 37.94% discount. You are saving $11.00. Hardcover is $26.99 with a 37.22% discount. You are saving $16.00.* I have a new shipment of books arriving within two weeks. You can email me at annepm@comcast.net to order.

If you buy online, it is a little more expensive; however, you have a seller’s book return program. Also, if you order through Amazon, it is my understanding there is free shipping if you order two or more books together.

*Please note this doesn’t include shipping charges on all books.

Just Released – New Book

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Lingering Shadows - 2It’s here finally! Lingering Shadows has been released and is online on Amazon and Barnes & Noble websites. Working on my next book, Saga of the Ages, surrounding the American Revolutionary War. Created as a fiction, historical novel, I’m already up to the 6th chapter in writing it. Entails espionage, double-spies, romance (sex) and murder.

Lingering Shadows is my eighth book, gorgeous front cover design, 406 pages in length, full of beautiful houses from the post-Civil War Era. An historical novel, it is a creation of tragedy, patriotism and love of family. It entails the American way of life after the Civil War. A must-read for any historian or history bluff. Facts and events are true; characters are fictitious.

Available in Hardcover, Softcover and e-Book for all those Kindle lovers. I can give you a little better price than websites when I get a shipment of books. They usually come within two to three weeks (maximum).

A Good Day

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As promised, I am trying to blog weekly, if not daily. I’ve missed blogging so much. It not only gives me a social outlet, it helps to connect to others around the world. Although my philosophy may not be the same as others, I do express my own opinions and thoughts as I see them. Remember, these are just my opinions and not reflective of others’ or bias in anyway.

My mother is getting stronger everyday. A week home from the hospital, she is now up and around again. A different story than last month, as I saw her weakening and barely able to walk across the floor. The realization that I almost lost my mother is a sad one. Nevertheless, the three trips to the hospital since early February seem to have diminished. Let’s hope they stay that way.

I feel accomplished and I may say honking my own horn, proud to have created another book. This is my eighth book within four years. I couldn’t have done it though without the help of others. My publishers have been wonderful. They are a bit on the expensive side, but when you get a publisher that works, stick with them.

It is a beautiful and sunny day and the weekend brings in the beauty and warmth of springtime. The robins are scrambling on the ground and young birds chirping in their nest. The trees are about to bear fruit as blossoms are starting to appear. The bulbs are in the ground, ready to be replanted. A sign that wintertime is over this season.

I will leave you with this thought. When circumstances get a bit overwhelming in life, just remember that “This too shall pass.” Sometimes life brings us challenges suddenly without warning, but we have to get off the ground and start over again. This was a hard lesson I had to learn these past few months. You will be the wiser and the stronger person for it.