• About the Author
  • About the Book
  • Home
  • Poetic Gestures
  • Spiritual Lifting
  • Welcome To My World

The Main Focus

~ Embracing Life Today In A Creative Way

The Main Focus

Monthly Archives: October 2017

Waiting for Appointment

21 Saturday Oct 2017

Posted by annepm2015 in Postings, Reflections

≈ 4 Comments

Tags

Blogging, Connecting, Inspirational, Reflection, Spiritual

Today, I am waiting to get scheduled for the Augusta Medical Center again. It is frustrating as the dates the doctor is available, are not convenient for me and vice-versa. I have to rely on transportation to Augusta by others. I also need someone to help me with a wheelchair. My cousin has offered to take me the end of next week, but I do not know if I can get scheduled in that short of notice. The research office needs time to get the new drug called Amifampridine Phosphate to the office. This is the drug I mentioned before for the study of Lambert-Eaton Myasthenic Syndrome (LEMS). Actually, this is the fourth phase of the study on LEMS. The research team is trying to get FDA approval of the drug in the U.S. There is already approval in Europe.

The research team in Augusta seem to think that this drug will help me tremendously. It is designed to help with weakness though, not antibodies. I will still be required to take monthly infusions. I am trying to get approval from insurance to be changed to Rituxan. It would require infusions every 3 monthly instead of monthly. I have been getting IVG-Gammagard infusions monthly for over six years. IVG-Gammagard is produced from donor blood cells to replenish good antibodies to the blood system. I have to sign a consent form, even now, to be administered the drug. Fortunately, the donor blood is screened and filtered for disease and blood conditions. Rituxan is used for patients suffering from autoimmune disorders and chronic blood cancers, such as leukemia. My neurologist at Emory seems to think it will have a good effect on my condition. It interacts with the B-Cells, putting in good antibodies into the blood stream, which my cells no longer produce.

Though frustrating, I am at a stage in life that whatever I try, it will not harm me. What do I have to lose? I have been on a long journey to find healing for this disease. I rely on God and His power to heal me, but the waiting period is intensified during this time. I am blessed to be alive and grateful to those who donate blood. Without their kindness and consideration, there would be no other treatment for this dreaded disorder.

I am most thankful to God; I believe His peace and comfort are upon me. His grace has shined upon me. I am a believer in Jesus Christ; I believe in His healing touch. I believe in the Word of God. It is a powerful sword. “If thou prays in His namesake, thou will be done.”

For all, I hope you have a wonderful weekend. May God shine His many blessings upon you. May we find security and comfort as we walk through life.

 

Share this:

  • Twitter
  • Facebook
  • Reddit
  • Google
  • Pinterest
  • Email
  • LinkedIn
  • Tumblr

Like this:

Like Loading...

New Author’s Website

Please click on my new author’s website at www.annermurray.com for more information on the collection of books and ordering.

Newest Production – March 20, 2018

Trail of Betrayal

Saga of the Ages

Lingering Shadows

Glimpses of the Past; Heritage of the Old South

Shattered Dreams

A Book of Poetry

Gentle Rain of Thoughts

Wounded Heart in Flight

The Jagged Edge

Writers and Authors

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 3,897 other followers

Archives

  • February 2019
  • January 2019
  • December 2018
  • October 2018
  • September 2018
  • July 2018
  • June 2018
  • May 2018
  • April 2018
  • March 2018
  • December 2017
  • November 2017
  • October 2017
  • September 2017
  • August 2017
  • July 2017
  • June 2017
  • May 2017
  • April 2017
  • March 2017
  • February 2017
  • January 2017
  • December 2016
  • November 2016
  • October 2016
  • July 2016
  • June 2016
  • May 2016
  • April 2016
  • March 2016
  • February 2016
  • January 2016
  • December 2015
  • November 2015
  • October 2015
  • September 2015
  • August 2015
  • July 2015
  • June 2015
  • May 2015
  • April 2015
  • March 2015
  • February 2015
  • January 2015

Copyright

© January 2015 - present. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Anne R. Murray and The Main Focus with appropriate and specific direction to the original content. Unless otherwise indicated, photographs are also my own property and may not be reproduced.

Blogs I Follow

Blog at WordPress.com.

www.BetterYourWellness.com

Healthy Snacks, Controlled Weight, Energy, Livestyle!

Growing Up Is Hard

Adulting tips, figuring out life, learning all the things we don't learn in school etc.

Quaintrelle Vibes

-Dhanya Nair

Merry Motherhood

Musings of a first-time mommy

Living with an autoimmune disease

Looking for natural help to heal

English Editing Services | Ediket

Online Proofreading Services & English Editing

Bekah Writes

The Musings of a Millennial Mom & Writer

Elegantly • Chaos

She made broken look beautiful and strong look invincible. She walked with the Universe on her shoulders and made it look like a pair of wings ...

MakeItUltra™ Psychology

Psychology to Motivate | Inspire | Uplift

Her Chapter One

Every Adventure is a New Chapter in Life

Gareth Roberts

Unorthodox Marketing & Strategy

I.deal Ideas

Understanding the world

Matt Sexton Marketing

Business leaders. Tech company profiles. Marketing Advice. All in one place.

The Dank Meme Page

Terrio Jenkins

Be Terrific

Perception

feelings, thoughts and dilemmas

Chameleon at Work

Time to Write

GJ Stevens

Writing Fiction. Blogging Fact

Simply Chronically Ill

.......living as simply as possible with chronic illness

Shabdsiyapaaa

Kuch Alfaaz Dil ki Kalam Se

loading Cancel
Post was not sent - check your email addresses!
Email check failed, please try again
Sorry, your blog cannot share posts by email.
%d bloggers like this: