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I went to the doctor yesterday for a follow-up. I found out why I’ve been so sick after infusions that I was getting too much of them for about 3 months. Apparently, I was suppose to get ideal weight (120) opposed to normal weight (145) and that made a difference. 25 lbs. is significant to me! Obviously, the center had a misinterpretation of my previous orders. I am glad now that I am establishing home visits. At least it was found early. Hopefully, it didn’t damage my immune system even further. The worst part are the constant headaches and nausea/vomiting. If these continue, I could be looking at a medical lawsuit (God forbid) down the road. My neurologist said to give it another 3 months to see how I feel.
Something good came out of the visit though. I got a prescription for a scooter. After five years, it’s getting down to that and just to be used when I’m out at the park or shopping for balance. Another is a prescription of physical therapy, which I’ve put off for 3 months. It will feel good to stretch my muscles again.
Home visits for infusions have already been approved for next month. It was pretty quick but the bad thing will be the expense. My primary insurance does not support my diagnosis (LEMS) and I will have to pay 15% of my secondary insurance. What happens if it doesn’t pay? I will cross that bridge when it comes to that. One step at a time.
YesterdayAfter said:
Very good Anne thanks for sharing with this post!
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annepm2015 said:
You are welcome, Carolina. I’m relieved too.
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The V-Pub said:
At least they caught it. Hopefully, the correction will make you feel better quickly. Congrats on the scooter!
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annepm2015 said:
Thank you, Rob. I knew something was wrong, but just didn’t know what. Ignorance is bliss I guess! I think the scooter will help when being outside. I need to get out but limited because of physical weakness.
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cote8050 said:
sending healing thoughts and prayers to you. Michelle
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annepm2015 said:
Thank you, Michelle.
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Marcus said:
Glad things are straightening out for you (even muscles maybe?)
Just watch out for the speed traps when you’re on that scooter.
😉
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annepm2015 said:
Thanks, Marcus. I haven’t gotten it yet. Does everything come assembled with it? Please advise as I’ve never owned one before. Anne
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Marcus said:
actually I haven’t either, but I understand they are not super fast.
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Erika Kind said:
So glad your problems “only” occured from a wrong dosage! I am so happy that you get the needed support now. Hope you feel better soon. It is nerve wrecking when always feeling that sick!
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annepm2015 said:
It is, Erika. It is so stressssssful. I was almost scared I had another form of cancer but doctor told me yesterday, no threat now, thank God.
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Erika Kind said:
Only that might make you feel better already. I wish you a wonderful weekend, Anne!
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annepm2015 said:
You too, Erika.
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Erika Kind said:
Thank you, Anne! 😊
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Jean M. Cogdell said:
I do hope you are on the up swing to feeling better. @jeancogdell at Jean’s Writing
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annepm2015 said:
Me too, Jean. Hopefully the right dosage will do the trick!
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purpleslobinrecovery said:
Man, I’m so glad the mistake was caught sooner rather than later. I prayed for you today. Melinda
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annepm2015 said:
Thank you, Melinda. Prayer works!
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Ralph said:
Thank you so much for your visit to my blog Anne. I know where you are coming from with your posts as I am under a Neurologist and had IVs and am on a 3 month wait to see what happens. I do wish you well and hope a cure is found for you. Have a great Sunday. Ralph xox ❤
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annepm2015 said:
Thank you, Ralph. 🙂
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The V-Pub said:
Hi Anne…just checking in to see how you’re doing.
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annepm2015 said:
Thank you, Rob. I’m starting to come back to life slowly. I’m getting there.
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walkerkaty0 said:
I am glad they caught it early. I hope you start feeling better soon! 🙂
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annepm2015 said:
Thank you. I’m coming back slowly.
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creakingbones said:
Wow, you will be able to terrorise the neighbourhood on your scooter. Really though, bringing no longer housebound will be great for your morale and freedom of movement in the open air is great for both mind and body. Your inner being should already be feeling more positive after such a rotten recent experience. Thinking of you.
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annepm2015 said:
Thank you. I will be using scooter for outside only to go to park or shopping. A great idea I should have done last year. A way to get out and don’t be such a recluse. Good to hear from you again, blogger.
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creakingbones said:
Good for you.
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annepm2015 said:
Finally, starting to feel better after 2 weeks of misery. Eventually got an appetite back and lost about 15 lbs. already during this time. I was not overweight to start with.
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creakingbones said:
I know all about weight loss. Last November I lost just over 12 kilos, about 25 lbs, in under a month. I was more fortunate than you as mine was a result of a prescribed diet and not from your rotten experience. At least after my weight loss I could do up my shoes from a standing position. You always look trim, taught and terrific in your photos whereas after my weight loss I looked just old and wrinkerly. Thems the breaks.
Now you are feeling better your weight loss means you can indulge in your favourite foods and not feel guilty.
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annepm2015 said:
Thank you. I’m dying for a milkshake right now but want to maintain weight loss. My nephew is getting married this October. I want to be truly slim for wedding. Such as life. I don’t see that you need to lose weight now.
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creakingbones said:
Unfortunately I’ve been consuming ‘comfort’ food now it’s getting colder and am heading back to becoming an endomorph. Tomorrow the pedometer is going back on the belt and weather permitting I’m aiming to join the 10,000 steps club. Wish me luck.
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annepm2015 said:
We are getting hotter here – in the 90’s today and feels like a 100 degrees in the sun. I forgot the contrast in weather across the world. I wish you well on the 10,000 steps club.
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creakingbones said:
Thanks. Today is a no goer, rain, rain and more rain. The land does need it though So I’m not complaining.
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annepm2015 said:
Wish we had rain right now, rather, a huge pool we could splash into. It’s that hot and here, we have the humidity too.
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