LEMS Study

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Blogging, Connecting, Media, Networking, Reflection, Social Media, Writers

I’m excited to announce that after six years, with my sister’s help, I have found a study primarily for those diagnosed with LEMS (Lambert Eaton Mysathenic Syndrome). The study takes place in either Miami or LA. The program manager contacted me today. He was not surprised I developed this disease from cancer. He seemed quite knowledgeable about the disease. He is trying to contact my neurologist at Emory.

There is one other option in August, GA. My sister Susan and her husband could drive me there. Also, I did find a friend in Miami who will drive with me from Ft. Lauderdale to Miami. My niece said she would drive me to the Atlanta airport. My sister Janice said she would also. Of course, a lot of prayers will be needed. It also depends if my doctor determines I am a candidate for the study.

I knew there was something out there that might help improve my quality of life or help others with this debilitating disease. I only wish it hadn’t have taken six years to find it. It is a new drug introduced that the FDA is trying to approve in the United States. It has already been approved in the European market.

I will see what develops in the next few days. Not sure at this stage when the study will begin, but I feel it will be soon. The program manager advised I will need to be placed on the drug first before the Miami study. Please keep your fingers crossed and prayers for a positive outcome. I pray this is the answer I’ve been looking for. Hopefully, it can replace my infusions one day.

No offenses were intended for friends or family members. I’m sorry if anyone was insulted with previous comments. This is an exciting moment, yet scary and emotional at the same time. Praise God for His goodness. If it is His will, the doors will open.

Mom is Home Now

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Blogging, Connecting, Inspirational, Media, Networking, Reflection, Social Media

Yes, I’m happy to report that my mother came home from the hospital this afternoon. She seems to be doing okay, but very sore from surgery. I think she is feeling a little better. She doesn’t look as weak as when she went into the hospital last week. She is taking new medications and seems a little bit stronger than before.

Thank you guys for all your prayers, well-wishes, encouragement and support. They mean a lot and much appreciated. It is good to be blogging again and connected to others. Stay well and have a great weekend everyone. Please continue to pray that my mother’s blood clot will soon dissolve in her right atrium.

Update

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Blogging, Connecting, Media, Networking, Reflection, Social Media

Thank you for all the prayers and well-wishes. They are uplifting and it helps to stay connected to others. For those that have asked about my mother, she seems in good spirits. There have been tons of prayers for her, especially during her surgery on Thursday. Her heart surgery was nearly 4 hours long. From my understanding, it took a long time to find a vein beforehand. She has had a rough time, but she seems to be resting now.

Talking to her tonight, I was relieved that she was able to express how she felt. She sounds good, but she is experiencing dizziness. Hopefully, it is only due to her medications and she can come home from the hospital soon. Even at my age, I still need my mother alive and well. My mother has been one of my greatest motivators in writing books. The last thing she said to me tonight was, “I love you,” which I quickly replied, “I love you” too.

A Mother’s Love

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Blogging, Connecting, Creativity, Inspirational, Poems, Poetry, Writing

Forgive me for not posting this yesterday. I was having technical trouble with my monitor. Here’s to all the mothers in the world. I entitled it, “A Mother’s Love.”

To my mother,

The most beautiful woman,

In the world,

You gave me life,

And nurtured me at birth,

Through the growing years,

And for that,

I am eternally grateful.

Is Social Media Becoming An Overkill?

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Advertising, Blogging, Connecting, Marketing, Media, Networking, Promoting, Social Media

I have noticed how much people whine and complain about not getting stats lately. I won’t say anymore on this subject as you know who you are. If you did your homework well, you would know that stats go up and down at certain times. It’s a natural flow in our daily lives. Networking is a process of connecting to others and promoting your blog. It lets others know you are out there. Truth is, I am guilty of this insane habit too. I go through my email everyday, networking to create responses and overflow to people in the blogging world. Sometimes, I have so much clutter in my email that I quickly glance at the posts, deleting unnecessary ones or uninterested (boring) ones. I