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It has been a remarkable week. First, my father is building up his strength after suffering a stroke in the early part of December. His several weeks of recouping from his illness have gone well. Truthfully, it will take months for him to recover for a man at his age. My brother-in-law had two surgeries this past week. According to my sister, he is doing all right, just in pain right now. My mother has healed from a broken hand and my fractured ribs have mended over the last few months.
I have been looking for transportation to Emory whenever my sisters can’t take me. It is a lot to ask them and interrupt their schedules; however, I’m getting where I’m afraid to drive to Atlanta now. I found someone this past week and it is a blessing. The charges are very reasonable and she lives close by. More importantly, God provides our needs if we ask Him. In addition, on Friday I was approved home visits for infusions. It couldn’t have come at a better time. The doctor is increasing my treatments next month. The IV-Gs will be added two days monthly, as well as continuing chemotherapy for the autoimmune condition.
There are ups and downs with a chronic illness. I realized that I used to identify with the disease, but I’m working on changing that. It was my ego getting in the way. I was in a dark place. I didn’t want to get out around others or socialize for awhile. My health had worsened this past year. I was getting weaker and very depressed, as I was getting more home-bound and bedridden. My quality of life was getting very poor, but the good thing is that I still maintain hope and optimism.
I find encouragement and balance through my writing. It is therapy to me. It gets me out of my depressive state. People don’t seem to understand that it is my livelihood, my passion toward life. Sometimes, I feel discouraged by others’ comments, especially when they tell me to stop publishing books because of printing costs. When I received the derogatory remark about my books a few weeks ago, it first pierced my heart. In retrospect, it helped in publicizing my books on social media. So the person actually helped me instead of harming me. A good lesson to learn.
I hold on to faith. It is easier to give up and let this disease take over my body without treatments. A decision I was thinking about at one time. But I still resist; I still fight for life. I believe God has plans for me. If it to only encourage and inspire others, then so be it. I am amazed by His everlasting love and wisdom. I’m beginning to understand more of myself. God is good and with Him beside me, I feel comfort and determination.
Anne, I’ve found you again! I’m not online much any more and when I am it’s difficult to find my old friends, and in this case, difficult to read about all the bad things going on in your life. I don’t think anything will dim your spirit though, and that will keep you going for as long as you are able and willing! Fractured ribs? Ouch! How horrible to think about, even tho I’ve never had them, only bruised at one time. That was bad enough, so I am sure fractured is so much worse. Try not to laugh, or get a really good pillow to hold over the ribs. It at least gives the illusion of doing something.
My MS gets worse and worse, but I can’t take any of the medications for it. I’ve tried several with horrible results ranging from blackouts, falls, rashes, nausea, blindness to heart attack, so I’m just not willing to continue trying to modify the darn thing. I’ve lived with it for 64 years now and I’m still kicking (sometimes with feet in the air when I fall) so I’m in better shape without the meds than with them. One of these days I’ll fall and my head will split open but as my son tells me, that’s the hardest part of my body, so when that happens it will be God telling me it’s my time to come home. Naturally I’ve offered to hit my son on his head to see if that’s the hardest [art of his body, but he can outrun me so it hasn’t worked out just yet.
I’ve been keeping busy lately making teaching aids for my granddaughter. She is an occupational therapist working with kids from elementary school age to 22 years, and asked me if I could come up with something more interesting than what is offered by the companies that supply the institutions. I checked the link and figured that with time I could beat the boring things they offer, so I’ve been making items that are fun, bright, useful, informative, and just a lot of fun for me to do also. I also began quilting again as a favor for a cousin, then started making some for family Christmas gifts. I have decided I’m ahead for next year rather than behind for last year, a nicer way to think about all I still have to do to finish them.
I really have to get off this machine now and find some food! It’s just so wonderful to find you again! Take care, and know you and your family are in my prayers.
Angie 😇❤🌹🦋🕊🙏
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Angie,
Glad you found me online again. I wondered what happened to you. Sorry that your autoimmune has worsened. Mine has too from last year. Starting next month, I am approved home visits for treatments. I will be getting IV-Gs two days a month, as well as rituxan every 3 months from the first day. They are determining whether I can get rituxan at home though. I might have to continue going to the cancer center for those infusions. Always something!
I wish you were able to get treatments that made you feel better. I guess MS is treated differently than my autoimmune. I have to have infusions on a regular basis. My problems are global weakness, fatigue, lack of energy and coordination.
I actually fractured my ribs in mid-October so I have mended from them. I couldn’t cough, sneeze or even breath hard. For about 2-3 weeks, everything was so painful to move, especially sleeping at night. I couldn’t get comfortable because of the pain. I’ve learned my lesson though. My father seems to be getting stronger after his stroke and my mother’s hand is healed, I believe.
Anyway, going tomorrow (if it doesn’t snow and rain) to see about some big calluses on my feet. Because my balance is off now and the way I walk now, they are painful to walk on, especially on the left foot. It is pressure produced from my lack of coordination.
Are you being hit by this snowstorm tomorrow? Here in northwest Georgia, they are predicting snow in the mid-morning to afternoon and rain later on tomorrow evening. If it freezes,.there will be ice on the roads. Not traveling weather and the possibly that everything may be closed tomorrow.
I am writing on my newest manuscript. It has been a slow process, due to so many interruptions this season. I’ve been known to whip one out in 5-6 weeks. Hopefully, I will be finished soon. I am more than halfway through on this one. Making corrections, rewrites and revisions are what takes time to me.
I wish you well and glad you wrote to me. I miss the connection. I’ve been blogging lately, but it has been two months ever since my postings last November. Please stay safe in this winter weather and keep in touch.
Anne
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So good to connect again! I’ve really missed it with everyone. I’ve had to cut out a lot of things because of the advancing symptomsb of my autoimmune. The most irritating fot me is the vision loss. I’ve always taken it for granted but now am thankful for the days when I can see enough to do anything at all. Reading was once one of my favorite pasttimes but now is something seldom picked up at all. I know there are typos in this but today they are too difficult to see si they will not be corrected. on the days when the vision is better I do a better job of typing.
I’ve been receiving home care from my doctor, therapy, labs, and other medical services for he the past 5 years and it helps a lot. there are several treatments for MS on the market now and I have tried some of them, but the ones 7 tried had such horrible side effeffects i had to stop them after a few weeks. I just don’t want to be sick all the time, or falling and hurtung myself. I can see that more and more words are becoming red lined and my eye strained today. hopefully can find you more now to continue in tiuch.
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