Hi guys, I’ve been under the weather a little lately. Nobody likes a depressing post, including me. Yesterday, I didn’t receive a very good report. I went to my regular neurologist yesterday morning. The doctor advised that the autoimmune (Lambert-Eaton Myasthenic Syndrome) illness is worsening. He prescribed a new medication used to improve muscle strength in patients with a certain muscular disease (Myasthenia Gravis). It helps with neuro-transmitters to improve strength and to feel better in general. He also increased frequently of IV-G infusions to monthly again.
The doctor called back this week and increased dosages on infusions. He has increased to 1 KB per day for two days straight. Cancer Center says this is a lot of medication and may break it down (in half) at first.
This is harsh reality for me but I still hold that one day I will improve and can get better. I have had this disease for at least four years now, maybe a little longer. It was not diagnosed until spring of 2011. The doctors tell me it developed after diagnosed with breast cancer in the fall of 2010. This sounds like a broken record, I realize.
I don’t want any pity and I will stop this “pity-party.” I just want to vent this emotion I’m feeling at the moment – one of despair right now. I’ve fought a battle with my health and sometimes I feel defeated. I haven’t given up the fight but I think finding a cure is pretty grim.